Rare Disease Day at General Assembly
Date and Time
Tuesday Jun 7, 2016
9:00 AM - 5:00 PM EDT
June 7, 9:00 am - 5:00 pm
Location
1100 Courtyard, Legislative Building
Description
This will be an event to thank legislators for the NC Rare Disease legislation as well as an educational event for those who are affected by rare disease and those who work with rare disease.
Who can attend? The Rare Disease Advisory Council and the NC Rare Disease Coalition welcome NC Pharma, Biotech & CRO companies, researchers and clinicians specializing in rare diseases, patients and patient advocacy groups.
The General Public is welcome to learn more about rare disease and the efforts going on in the state of North Carolina as a result of this legislation.
Registration should be completed by May 25.
There will be tables provided so if you plan to attend to represent a rare disease whether as an advocate or an educator, please bring materials that can be distributed that day.
